Bowel cancer….

Jeebs

Active Member
Hello all,

New here, but didn’t feel like the introduction was the place to discuss this.

Part of what brought me to the forum and to take the plunge of booking a DSC1 and entering into the world of stalking was a diagnosis of bowel cancer at the ripe age of 33. Nothing makes you realise you need to do the things you want to do and enjoy your time like being told you might not have much of it left!

I’d just like to spread a bit of awareness and share my diagnosis journey.

In Jan ‘24 I had a colonoscopy, after having had around 6 months of bleeding when going to the toilet. Being typical bloke, I ignored it, hoped it would go away although deep down I knew it wouldn’t. After I’d had what felt like a BBC TV crew up there, I was sat down in a room and told that they’d found something “not so good”……..would they say anymore than that? No! I was given the number of the colorectal cancer team and told a surgeon would be in touch.

In February, I was finally told by my surgeon what “not so good” meant. I had a 5cm tumour partially obstructing my bowel, which would require me to undergo an anterior resection. I was told they didn’t yet know what stage my cancer was, and that I should consider “getting things in order” due to the size of the tumour. Not what you want to be told at 33.

In March, I had my operation. A large portion of my lower bowel was removed. Luckily, they were able to rejoin things and I avoided a stoma. I had complications after my operation and an expected 3-4 day stay turned into 10 days of hell.

In May, the histology of my tumour was finally back. My cancer had reached Stage 3B. Thankfully not stage 4 as they had suggested it might be, that said, it had very nearly penetrated my bowel wall, which would have meant a spread of the cancerous cells into my body cavity. They did however find another smaller tumour in the early stages of growth.

Just in time for my birthday, I was started on an extremely aggressive chemotherapy regime. This lasted 6 months until the end of November. I wouldn’t wish chemo on my worst enemy. It really is one of those if you know you know type experiences.

In November I rang the bell, having completed my treatment. I now have 5 years of monitoring.

You’re probably wondering why this new member is posting something like this….fair enough, I probably would be too.

My message to all of you is simple:

Please don’t ignore your bodies. If something doesn’t seem right don’t do what we all tend to do which is brush it off and hope it’ll get better on its own. Please take every opportunity to have screenings and health checkups! Most importantly, maximise the time you have, enjoy life and the world around you.

I was (and will be again) extremely fit and active. I eat a healthy diet, I don’t drink to excess and I’ve never smoked. If it can happen to me, it can happen to any one of you. Cancer doesn’t discriminate!
 
Thank you for posting this and sharing your journey, as well as including some important information about getting things checked out if anything seems unusual.

Great to hear that you rang the bell, and every best wish for things going forwards.
 
Glad your on the right side ,,,it must really be your worst nightmare , can't imagine and hope I never do , always good to re- visit these topics as we put these things to the back of our minds ,, welcome anyway from another from the ribble valley and enjoy the journey
 
Thank you for posting! I went through a battle of my own (very different and nowhere near as dramatic or scary as yours!) and came out relatively unscathed. I wish you well in your continued recovery, and applaud you for sharing!

You're so right, we men have a tendency to ignore signs and symptoms with the view that it'll all work out ok. Sometimes it just doesn't though. We're not shy asking for calibre advice on this forum, or how we should be training our dogs, etc. So why should our health, mental or physical, be any different? I wish you the very best!
 
Thank you all for the support, as cliché as it sounds if sharing my experience encourages someone to head to the doctors or send back their bowel screening test rather than not bother then it’s worth it.

Stubbornness really is a killer. I nearly learned that the hard way! 😂
 
Thank you all for the support, as cliché as it sounds if sharing my experience encourages someone to head to the doctors or send back their bowel screening test rather than not bother then it’s worth it.

Stubbornness really is a killer. I nearly learned that the hard way! 😂
I was very much like yourself Jeebs--bit of blood from the bum--no problem! I went through pretty much what you did and have a permanent Stoma, as the tumour was too low to allow re-connection.
Anyone who passes ANY small amount of blood from their bum DO NOT ignore it!!
I'm 72 and nearly 4 years in from my surgery, life's not great but it's shed loads better than the alternative!
 
I was very much like yourself Jeebs--bit of blood from the bum--no problem! I went through pretty much what you did and have a permanent Stoma, as the tumour was too low to allow re-connection.
Anyone who passes ANY small amount of blood from their bum DO NOT ignore it!!
I'm 72 and nearly 4 years in from my surgery, life's not great but it's shed loads better than the alternative!
I got very “lucky” with where my tumours were, they were just above the rectum at the rectosigmoid junction, which is the last bend before it points “down” so to speak. I think if they had been any further towards the exit our outcomes would have been the very similar.

I’m glad you’re recovering and getting on with things as best you can. It definitely changes your perspective on things as well as day to day quality of life.
 
I had a similar experience but two months before they found the Alien living in my bowel I had a heart attack and had four stents put in.
That of course complicated things in that the surgeon wanted to wait for the stents to settle before he started my surgery treatment.
That was not to be as long as he hoped as I had severe pains in my stomach shortly after and was whipped in and started on straight away.
It was not until I went for my check up a few months later that I found out that my stomach pain was appendicitis so they had to operate and did my bowel surgery at the same time and , he told me, my heart stopped during the procedure so I was on a machine while they carried out their work.
There was a few 'funnies' during the time for instance when they told me I would have to have Chemo I just shrugged until they explained it as I thought it was just sat under a lamp !!
Then there was when they were putting the PIC line in, it would not go round the corner at my shoulder very well, then a senior nurse came in, she was Irish, and had a go and all the while she was singing and sure enough it went round and stopped just short of my heart as was planned.
Then there was the Chemo sessions. My first dose was horrendous, luckily I was in a bed as is usual for anybody having their first session apparently.
My legs went up in the air, I was hooping and coughing and acted like a wild hooligan.
Then the Senior Oncologist Nurse came up to see what all the fuss was, by which time I'd calmed down a bit, she asked if I was Ok to which I replied yes fantastic and hooped up almost over her.
After my first session, three weeks later they must have adjusted my dose as I was moved to a chair the same as the rest of them and all I suffered then was head aches and blurred vision, nausea, oh and loss of hair of course. All I had tho was a bald streak down through the middle of my head making me look like a monk !!
ne other thing was the tingling sensation my when I touched things
The Chemo sessions are something I would certainly not wish on my worst enemy, weakness, tiredness, skin the colour of candle wax and sunken cheeks and a stinging sensation in my hands whenever I touched anything.
Oh incidentally each session lasted from three to four hours so to pass the time I counted the cracks and tiles in the ceiling of the ward !!
The weakness lasted for quite some time and the feeling of cold was enhanced by the chemo as it not only thins the blood but destroys some of your ability to fend off things.
I went on a hunting trip after a while when I thought I was up to it but unfortunately I was not in full health and needed a bit of help now and again, unfortunately one of the other hunters took exception to the help I was given and slagged me off, calling me all sorts of names, not to my face but posted them on our hunt report.
So it would seem not everybody is aware of the problems caused by Cancer and the treatment to cure it.
 
@Jeebs it seems you may now be somewhat short on guts. To jump straight in and share this sort of story with a bunch of strangers on the Internet shows that you more than make up for it with balls!

Inspired that you have chosen maximize life's rewards by getting into stalking. There's a huge amount of goodwill in the stalking/hunting community.
 
My Mrs has a stoma after a similar diagnosis. Not fun but we get on with things and enjoy life. Important message from all this is if you pass blood, get it checked.
 
Sorry to hear of your situation, is there a family that has not been touched by cancer.
All you can do is be strong for your family and yourself.
All the best for the future.
 
As an add on to the warnings around the visible signs that things may be going south ( not intended as a pun), These things can develop very quietly, so if you get a little packet in the post containing what me & the missus call the "Poo sticks" game, USE IT! these tests look for "Occult " blood signs that are the earliest indications something could be going south.
 
at 33 , jeez thats rough !

my old man has just had a section of his colon removed , picked up by a funny blood test (he's diabetic) camera in the rear December last year went in for surgery jan 6th , out 4 days later and currently recovering at home , he's 82 and has never looked after himself !

well done for sharing your personal journey and i agree whole heartedly that we should all live our best lives as tomorrow is never guaranteed !

my missus works for McMillan so is all over me to get checked all the time
 
I've just received my 2 yearly sh.t on a stick test, which the NHS send out to all those of a certain age. Hopefully it will be a negative result.

I will say that catching cancer at such an early age is a bit of a shock for anyone. But I raise my glass and hat to you for your strength on joining the site and making us aware of cancer, at any age.
I am not sure where you live, but when you feel the time is right, drop me a PM and we will try and arrange a mutual date to go stalking, No charge.
 
As an add on to the warnings around the visible signs that things may be going south ( not intended as a pun), These things can develop very quietly, so if you get a little packet in the post containing what me & the missus call the "Poo sticks" game, USE IT! these tests look for "Occult " blood signs that are the earliest indications something could be going south.
Yep did my Poo stick and it was OK.

My late father had a stoma so I know what it's like. Awful when it comes off and you have to clean it up 🤢
 
As an addition to this, a couple of other things not to ignore:

1 - eczema type skin that doesn’t heal with the usual cream. I had a patch on my face which ended up being pre-cancerous tissue. Easily fixed with Efudix, so if in doubt get it checked

2 - moles, and I’m not talking the small burrowing rodents!! My wife found one on her arm that didn’t look great (dark and irregular) and it is now going to be removed as most likely a malignant melanoma. She is also going to have another removed that looks totally normal. Neither of us would have ever thought it was one to watch, but the consultant also believes it is an MM. so if you have moles then get them checked every 6 months and look for shape, colour and size changes, as we would never have spotted the second one.

Ageing is great, isn’t it!!
 
well done for sharing your personal journey and i agree whole heartedly that we should all live our best lives as tomorrow is never guaranteed !

my missus works for McMillan so is all over me to get checked all the time
Good words and I totally agree, Enjoy life whilst you can because luckily we don't know what is around the corner, I collapsed almost 2 year to the day and was rushed to hospital, I was told everything was OK and released 45mins later and told these things happen but I must inform DVLA and my FEO.
DVLA stopped me from driving for nearly 18month but the police allowed me to keep my FAC, Move on a few month later and an MRI following my earlier collapse revealed a brain tumour which turns out has been inside my brain for at least 20years and probably longer because of the type and reviewing an MRI 2008 when I now know it was missed, Anyway I'm recovering well though I have got a rather large scar on head from the 47 staples but I'm still here to tell the tale although life will never be the same again I continue to shoot and I am back on the road so it could be a lot worse as I personally know people who have died from brain tumours which I'm sure most people do.

Take care folks and enjoy life as much as you can whilst you can because we really don't know what tomorrow brings
 
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